Community News


David Willis MD
 
HANS is honored to produce a brand new video with David Willis MD, Chairman of the Oregon Pediatric Society. The video is an introduction to autism for Primary Care providers and is based on the Autism Physician handbook. Click to view.

HANS wishes to express sincere thanks to Dr. Willis for generously donating his time and facility for this video.


 
 
Autism Society of Oregon
Annual Walk 2010

Tiger's Future Drawing
Tiger Lee was the featured artist
for the t-shirts for this year’s walk.
 
Our thanks to Loredana Lembo
for translating the Physician Handbook
and Poster into Italian.
Here is her commentary:
     

My name is Loredana Lembo, and for nearly two decades I have been active in the field of special needs.  My professional activity started with children with cerebral palsy, and with adults with degenerative diseases. This work had a focus on the communication, behavior, and the environment of people with learning difficulties, and served as a prelude to my current practice in the field of Autism Spectrum and related disorders.

Too often, when I come in contact with new families for the first time, I am being told ‘if only we were aware earlier’ and ‘if someone had told us more before’, that they could have taken in different course of action at the early stages of their child’s development.  ‘Not knowing’ usually caused a delay in taking swiftly the appropriate steps needed to diagnose, and to intervene with aim at betterment. During many years in the field of Autism and related disorders, both abroad and in my native country Italy, too many parents and caregivers shared with me their enormous disappointment of not having been aware. These deep expressions of pain and sorrow spurred me on to collaborate with the Help Autism Now Society, who offered an invaluable opportunity to make a small contribution in the shape of translating for an Italian version of the “Autism Physician Handbook” (designed by HANS). It is my profound hope that the depiction of the early signs of Autism alongside the explanations in Italian language will help towards reaching more Italian speakers with the crucial message: “Learn the signs, Act early” (CDC). That way parents can track their child’s development and act early if they have any concerns. The importance of awareness cannot be highlighted enough.

Thus far, the comments coming from medical professionals in Italy about the translated handbook read as follows: “typical symptoms of Autism are described in a clear, concise and unambiguous way through the support of precise and coherent illustrations. The set of suggestions and information are in line with the latest scientific findings and it can be of great help for all stakeholders”; … “a useful tool for family members and health professionals involved in the treatment of developmental disorders”; …“helpful to parents and pediatricians to identify alarming behavior in the initial phase of the suspected diagnosis”. These comments are tangibly encouraging thereby suggesting that the message for everyone, no matter their role as stakeholder, is clear: the earlier the diagnosis, the faster we can start intervening, the greater the chance for a better outcome for the child and parents involved. For their support and their remarkable efforts in getting a clear message out there, I thank the Help Autism Now Society and all those who support the Society. Also, I wish to extend my gratitude to all the people around us who share and spread the indispensable information contained in the Autism Physician Handbook so that its message can reach everyone.

Loredana Lembo - 10/2012

 
 
Our thanks to Akbar Baroug for translating the Physician Handbook and Poster into Persian.
Here is his story:
 
My name is Akbar Zahedi Baroug. I have a brother with infantile paralysis. If we had vaccinated plane several years ago, maybe he would have predestination. Now he is thirty five, without production, acceptable education, wife or clear future. At this time we confront with autism condition that cannot use vaccination plan, but we can early diagnose it and start to treatment appropriately.

I don’t think like “Descartes” who said, “Cogito, ergo, sum”, I am working and learning therefore I Exist.

Now, I work with children with autism and I am familiar with all approach approximately and apply to compose them in play. If they had early diagnosis maybe they would have better opportunity in their life.

 I think it is necessary that one therapist who graduate in rehabilitation fields should  study new knowledge, In fact, therapists should have a sufficient knowledge of brain dysfunction so that be able to plan a more effective treatment for that in a better way. Therefore, with regard to the experiences I had in the treatment of children with autism and close contact with them here, I have come to realize that:

1. There are no basic Screening and Referral system
2. No primary health care to ensure early identification for early intervention and treatment among autistic children.
3. There are no unique and national diagnostic Assessments like checklists, Rating Scales, etc.
4. Family and public awareness remains low.
5. family with disability children are now suffering from the quality of the health care delivery , low accountability of the health system , high rate of out-of-pocket Payment (OPT) and sometimes of high catastrophic costs.
6. The current approach toward rehabilitation and educational approaches in our country aren’t updated like developed countries. And so on.

Therefore, I got that some person try to learn and research in these fields ‘Also our psychiatrist and therapist with a lot of search and activity gain success in this field. In this regard corporation with institute like HANS and others help us to have more and better consequences.

I hope the health system here, accept more responsibility about them and as soon as possible make a beneficial referral system to screening and diagnosing them. and  Fatimah(my wife) , she has a MSC major in health management , I offer my thanks for her pure efforts in this field.

We shouldn’t shout some slogans that Child are future of our society, But they need good nurture, sufficient education and healthy psychosocial atmosphere, not a handful of words. I hope HANS and us had some opportunity to help each other in a respectful condition. Sadie Persian poet said;

Human beings are numbers of whole/
In creation of one essence and soul.
If one member is afflicted with pain /
Other members uneasy will remain.
If you’ve no sympathy for human pain /
The name of human you cannot retain!

I believe that we are part of a union body and humanity.
Finally, the translation of poster of CHAT and Physician handbook give me a fortune to take a small step for ASD’s child. I wish all child of Earth get equal chance and happily life.
  Akbar Zahedi 2011-06-15
 
 
 
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